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Publications


Here you'll find our publications on the service needs and outcomes of people on the autism spectrum. We report on a variety of indicators related to transition planning, education, employment and several other topics.

Our holistic approach allows us to look not only at how an individual topic affects the overall quality of life, but how these different aspects of life work together to produce more positive life outcomes.

  • National Autism Indicators Report: Health and Health Care

    Health and health care are critical issues for many children and adults on the autism spectrum. They may experience more frequent use of services and medications. They may need more types of routine and specialty healthcare. And their overall health and mental health care tends to be more complex than people with other types of disabilities and special health care needs. This report provides indicators of health and health care for autistic persons across the lifespan. Topics covered include overall health, health services, medication, insurance, and accessing services. We need to understand health and healthcare needs across the life course to support recommendations on how to improve health and health care at critical points across a person’s life. The purpose of this report is to catalogue indicators to aid in decision making to this end.


    Topic: Access to Services, Health and Mental Health
    Publication Type: Indepth Report
    Data Source: Medical Expenditure Panel Survey, National Inpatient Sample, Kaiser Permanente Northern California previously published research, National Survey of Children’s Health
  • National Autism Indicators Report: Children on the autism spectrum and family financial hardship

    Families of children with ASD face significant financial challenges due to their child’s complex service needs and frequent out-of-pocket expenditures for community services and health care. This report describes financial hardship among families of children with ASD (ages 3-17 years) and their participation in safety net programs.

    Topic: Access to Services, Community and Social Participation, Health and Mental Health
    Publication Type: Indepth Report
    Data Source: National Survey of Children’s Health 2017 (NSCH 2017)
  • National Autism Indicators Report: High School Students on the Autism Spectrum

    Characteristics of teens on the autism spectrum have been changing over the past decade, driving the need for updated statistics to provide a current picture of the population. This report presents updated statistics on indicators of demographics, disability, education, and health. For many of the indicators, we highlight the experiences of low income and minority youth, examining differences in functioning, health, and experiences by household income and race/ethnicity.

    Topic: Access to Services, Community and Social Participation, Education, Health and Mental Health, Transition to Adulthood
    Publication Type: Indepth Report
  • 2017 National Autism Indicators Report: Developmental Disability Services and Outcomes in Adulthood

    Many adults with autism have a difficult time achieving employment, continued education, and independent living. This report explores the experiences of adults with ASD who used services funded through state Developmental Disability (DD) agencies in 2014-15. We learn more about their characteristics, the quality of their lives, the opportunities they have to participate in their communities, their ability to exercise choice in their lives, and their access to needed services.

    Topic: Access to Services, Community and Social Participation, Education, Employment, Health and Mental Health, Living Arrangements, Independence and Rights
    Publication Type: Indepth Report
    Data Source: National Core Indicators Adult Consumer Survey 2014-2015
  • Community- and facility-based employment of adults with ASD who used state DD services

    Adults with ASD who use State Developmental Disability (DD) Services had low rates of community and facility-based paid employment. From the National Core Indicators Adult Consumer Survey 2014-15, 14% of adults with ASD had a paid job in the community in the two weeks prior to participating in the survey; 15% had a paid job in a facility-based setting; and 27% of adults with ASD had either type of paid employment, significantly lower than the 35% of all other adult DD service users. While paid employment is an ideal outcome, finding and keeping a job is hard  for many people with ASD.

    Topic: Employment
    Publication Type: Poster
    Data Source: National Core Indicators Adult Consumer Survey 2014-2015
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