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Publications


Here you'll find our publications on the service needs and outcomes of people on the autism spectrum. We report on a variety of indicators related to transition planning, education, employment and several other topics.

Our holistic approach allows us to look not only at how an individual topic affects the overall quality of life, but how these different aspects of life work together to produce more positive life outcomes.

  • National Autism Indicators Report: The Intersection of Autism, Health, Poverty and Racial Inequity

    This report examines the following two questions: 1) do income-based differences in health and health care outcomes look the same for children with and without autism? and 2) do income-based differences in health and health care outcomes look the same for BIPOC (Black, Indigenous, and People of Color)  children with autism and white children with autism? Examining the health and healthcare outcomes of children with autism in combination with other social characteristics offers several advantages. First, we can illuminate how demographics alone, and in combination with other social characteristics of children, are associated with differences in the rates of health and healthcare outcomes they experience. Second, it increases our understanding of the health-related experiences of social groups who are often neglected in research. Third, it provides current and comprehensive evidence on how children with autism experience relative disadvantages related to social determinants of health, which are aspects of the environment that affect health, functioning, and quality-of-life outcomes and risks.
    Topic: Health Equity and Social Determinants
    Publication Type: Indepth Report
    Data Source: National Survey of Children’s Health
  • National Autism Indicators Report: Mental Health
    The purpose of this report is to catalogue indicators of mental health and mental health care to highlight areas of needed improvement in practice and policy. Mental health care is an urgent priority and this report documents barriers that individuals and families face when trying to access mental health care. Good health and wellbeing require effective interventions and supportive policy to ensure that mental health needs of autistic children and adults are effectively addressed.
    Topic: Health and Mental Health
    Publication Type: Indepth Report
    Data Source: National Survey of Children’s Health, Medical Expenditure Panel Survey, National Inpatient Sample, Centers for Medicare & Medicaid Services Medicaid Analytic eXtract (MAX) files, Kaiser Permanente Northern California previously published research
  • National Autism Indicators Report: Family Perspectives on Services and Supports

    The families of youth and adults on the autism spectrum provide vital supports across the lifespan. This report explores what family members report about autistic adults: the settings they live in, their access to services, opportunities to participate in their communities, and the choices they have about their services and supports. We also look at the characteristics of family members themselves, how they participate in decision-making and choices about services and providers, and the types of supports they may need themselves to identify and coordinate quality care and to best meet the needs of the autistic adult.

    Topic: Access to Services, Community and Social Participation, Health and Mental Health
    Publication Type: Indepth Report
    Data Source: National Core Indicators Adult Family Survey and Family Guardian Survey
  • National Autism Indicators Report: Health and Health Care

    Health and health care are critical issues for many children and adults on the autism spectrum. They may experience more frequent use of services and medications. They may need more types of routine and specialty healthcare. And their overall health and mental health care tends to be more complex than people with other types of disabilities and special health care needs. This report provides indicators of health and health care for autistic persons across the lifespan. Topics covered include overall health, health services, medication, insurance, and accessing services. We need to understand health and healthcare needs across the life course to support recommendations on how to improve health and health care at critical points across a person’s life. The purpose of this report is to catalogue indicators to aid in decision making to this end.


    Topic: Access to Services, Health and Mental Health
    Publication Type: Indepth Report
    Data Source: Medical Expenditure Panel Survey, National Inpatient Sample, Kaiser Permanente Northern California previously published research, National Survey of Children’s Health
  • National Autism Indicators Report: Children on the autism spectrum and family financial hardship

    Families of children with ASD face significant financial challenges due to their child’s complex service needs and frequent out-of-pocket expenditures for community services and health care. This report describes financial hardship among families of children with ASD (ages 3-17 years) and their participation in safety net programs.

    Topic: Access to Services, Community and Social Participation, Health and Mental Health
    Publication Type: Indepth Report
    Data Source: National Survey of Children’s Health 2017 (NSCH 2017)
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