Giarelli has over 15 years of experience conducting research with patients, family members and health care providers, including multiple intervention studies. For the past decade, she has studied the life-long medical, psychological, and social problems, and health care needs of people with genetic disorders diagnosed in childhood, that require life-long enhanced surveillance and self-management. Study populations include, individuals with Marfan syndrome, cancer syndromes such as familial adenomatous polyposis (FAP), multiple endocrine neoplasia type 2a MEN2s) and autism spectrum disorder.
Giarelli is co-editor of the book Nursing of Autism Spectrum Disorder: Evidence-based Integrated Care Across the Lifespan (Springer, 2012).
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