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My Data, Myself: The Science, Law and Ethics of Genetic Databases

Friday, March 6, 2020

8:00 AM-1:15 PM

Please join us at Drexel’s Kline School of Law as we explore the interrelation between genetic science, privacy, law and ethics in the compilation and use of genetic databases. Top experts from across key disciplines will offer perspectives on the future of this exciting but perilous new frontier in technology.

CLE credits available: 2 substantive, 2 ethics

Register

Speakers

  • Joann Bodurtha, MD, MPH
    Professor of Genetic Medicine, The Johns Hopkins University School of Medicine
  • Holly Fernandez Lynch, JD, MBe
    John Russell Dickson, MD Presidential Assistant Professor of Medical Ethics, Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania
  • Hakon Hakonarson, MD, PhD
    Director of the Center for Applied Genomics, Children’s Hospital of Philadelphia
  • Sierra Luther, JD
    Contracts Associate, 23andMe
  • Reed Pyeritz, MD, PhD
    William Smilow Professor, Perelman School of Medicine, University of Pennsylvania
  • Mark Rothstein, JD
    Herbert F. BoehlChair of Law and Medicine, Founding Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine and Brandeis School of Law
  • Sheri Schully, PhD
    Deputy Chief Medical and Scientific Officer of the All of Us Research Program, National Institutes of Health

Agenda

8 - 8:30 a.m.  Registration and breakfast
8:30 - 8:35 a.m.  Welcome
8:35 - 9:35 a.m. 

Opening keynote presentation: Genetic science and frontiers of medical innovation

Hakon Hakonarson, MD, PhD

9:35 - 9:45 a.m. Break
9:45 - 10:45 a.m.

Panel on genetic science, clinical care and research

Joann Bodurtha, MD, MPH
Reed Pyeritz
, MD, PhD
Sheri Schully, PhD

10:45 - 11 a.m. Break
11 a.m. - 12 p.m.

Panel on law, privacy and ethics

Sierra Luther, JD
Holly Fernandez Lynch
, JD, MBe

12 - 12:15 p.m. Break to collect box lunches
12:15 - 1:15 p.m.

Closing keynote presentation: Law, privacy and medical innovation

Mark Rothstein, JD

Contact Information

Robert Field
rif24@drexel.edu

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Location

Kline Institute of Trial Advocacy,
1200 Chestnut St., Philadelphia, Pa.

Audience

  • Everyone