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The Impact of Progressive Supranuclear Palsy (PSP) Symptoms on Daily Functional Activities

Research Objectives

The goal of our study is to understand how PSP affects the ability to move in everyday life and and which effects have the biggest impact on daily activities for people living with PSP.

Participant Eligibility

  • This study is for adults living with PSP in the USA.
  • Willing and able to engage in a meaningful conversation about your experiences of
  • living with PSP.
  • Have a family member, friend, or caregiver who will attend the sessions with you.
  • Able to participate remotely via video call or phone call.
  • Be able to speak and understand English.

Location and Contact

If you and your care partner are eligible and agree to participate, you will be asked to join two video or phone call sessions.
In the first session, you will provide consent and then some background information about yourself and your symptoms. This session will last up to half an hour.
In the second session, we will ask you about your everyday life experiences living with PSP with a focus on your daily activities, such as walking, standing, and activities inside and outside your home. This session will last up to 45 minutes.
This research is approved by the Drexel University Institutional Review Board.

Please contact Clare Milner via email at milner@drexel.edu or by phone (267) 359-5550.