EdD, RN, MS, CRNP
Director, Certificate Program in Integrated Care of Autism Spectrum Disorder; Associate Professor
Advanced Practice Nursing
1601 Cherry Street, Room 385
Ellen Giarelli, EdD, is an advanced practice nurse with a post-doctorate in Psychosocial Oncology and HIV/AIDS from the University of Pennsylvania. She is associate professor in the PhD Nursing Program and the Doctor of Health Science Program (DHSc) at the College of Nursing and Health Professions at Drexel University.
Giarelli has over 15 years experience as PI conducting research with patients, family members, and health care providers, including multiple intervention studies. For the past decade, she has studied the life-long medical, psychological, and social problems and healthcare needs of people with genetic disorders diagnosed in childhood, that require life-long enhanced surveillance and self-management. Study populations include individuals with Marfan syndrome, cancer syndromes such as familial adenomatous polyposis (FAP), multiple endocrine neoplasia type 2a MEN2s) and autism spectrum disorder (ASD).
View Biographical Sketch of Ellen Giarelli, EdD
Giarelli is an expert in Grounded Theory and other qualitative methodologies, as well as strategies for public health surveillance of autism spectrum disorder.
Giarelli's current funding includes a grant from the WITH Foundation to develop treatment algorithms for patients with autism who are admitted to an acute care facility. She has been Principal Investigator or Co-investigator on multiple projects involving these populations, including an R21 funded by the NINR/NICHD (1R21NR009661-2) to study Self-management of Chronic Genetic Disorders and the Philadelphia Health Care Trust. She was Principal Investigator for the Pennsylvania Autism and Developmental Disabilities Surveillance Program (PADDSP) funded by the Centers for Disease Control and Prevention and Co-I for the CDC- Funded Study of Epidemiology of Early Development (SEED, PI: Pinto-Martin).
She is editor of two books: Nursing of Autism Spectrum Disorder: Evidence-based Integrated Care across the Lifespan (2012) and Integrated Health Care For People with Autism Spectrum Disorder (2016), published by Springer Publishing and Charles C. Thomas Publishers, respectively. These are the only texts, to date, that address the integration of knowledge of ASD with the delivery of health care services. She is coordinator of the Certificate program in the Integrated Care of People with ASD.
View Research Profile
Professional Society:As President of the International Society of Nurses in Genetics (ISONG) in 2011-2012, and a three- term Chair of the ISONG Ethics and Public Policy Committee, she has lectured extensively on the ethical, legal and social implication of advances in genetic/genomic sciences. She is liason to the NIH/National Human Genome Research Institute National Advisory Council for Human Genome Research, Bethesda, MD.