The A.J. Drexel Autism Institute is the first research organization built around a public health science approach to understanding and addressing the challenges of autism spectrum disorders. We invite parents, people on the autism spectrum, physicians, childcare providers and others to participate in research studies to advance the base of knowledge we have on autism from early detection through transition to adulthood. Take a look at the studies below and contact us if you are interested in participating.
For parents with a child on the autism spectrum
Disaster Communications Study
Families with children who have an autism spectrum disorder can have major challenges during disasters. The CDC is working with the A.J. Drexel Autism Institute to survey families so that they know what kind of information families need for their children during disasters. Parents and caregivers of a child on the autism spectrum are invited to participate in a 15-minute online survey. Answers will be used to help the government, your doctors, and community groups get families the information they need to help keep their children safe during disasters.
Improving Child-Treatment Fit in Autism Early Intervention Study
The goal of this study is to understand how to adapt teaching techniques to each child's way of learning. The study is open to parents of children ages 24-36 months who have been diagnosed with Autism Spectrum Disorder. Researchers will provide children with 10, 1-hour teaching sessions per week for three months to address their learning needs at no cost.
Communication in Autism Parent Coaching Program
The goal of this study is to test a new program called ‘Communication in Autism Parent Coaching Program’. The program aims to teach parents of children with Autism Spectrum Disorder how to build their children’s language and communication skills.
Lighting and Repetitive Behavior Study
How do fluorescent-based and LED-based lighting systems influence the level of repetitive behavior shown by young children with ASD? Children ages 6-10 years with an autism diagnosis and history of repetitive behavior are eligible to participate in two sessions including a screening interview, assessments and observation under both lighting conditions. Participants will receive $50 for completing both sessions.
Electronic Media Viewing Study
How does removing television and other screen media viewing affect young children with autism? Children ages 18 months-42 months diagnosed with ASD are eligible for this study. Children will be enrolled for 6 months, participate in genetic testing, visit Drexel for child assessment twice, and participate in weekly visits to support a screen-free environment. Participants will receive $100 upon completion of the study.
For people on the autism spectrum
Ethical Autism Research Cultures and Community Engagement
Recently, autistic self-advocates, the neurodiversity movement, and academics have worked to change the terms of ethical discussion about autism. They argue that autism represents a natural human variation associated with both strengths in need of cultivation and limitations or challenges requiring supports. Through your participation in an hour-long focus group or interview, this study hopes to understand your perspective on autism research development and design.
To participate you must be at least 18 years of age AND your own legal guardian and either 1) have autism, 2) be a parent/caregiver to someone with autism, 3) be an advocate, or 4) be someone who provides services to autistic children and/or adults.
For health care and service providers
Disaster Communications Study
Families with children who have an autism spectrum disorder can have major challenges during disasters. The CDC is working with the A.J. Drexel Autism Institute to survey health care and service providers so that they know what kind of information families need for their children during disasters. Health care providers or other health and social service professionals are invited to participate in a 15-minute online survey. Answers will be used to help the government, doctors, and community groups get families the information they need to help keep their children safe during disasters.
Mobilizing Community Systems Study
The Mobilizing Community Systems study is a collaboration among four universities and involves primary care training in ASD, universal screening using the Smart Early Screener for Autism and Communication Disorders, tracking of referrals and their uptake, and early intervention training, which are all supported by a web-based platform.
There are additional studies not sponsored by the Drexel Autism Institute also looking for participants. Learn more.